HNCA understands that head and neck cancer patients, survivors, and caregivers, face many challenges during and after treatment. In this section, you will find a number of resources to help you find the support you need, manage side effects, regain health and wellness, and find inspiration to continue fighting. In order to provide the most helpful resources, we’d love your feedback. If there is a topic you think we should include on this page, please drop us a line at info@headandneck.org!
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The Cancer Experience Registry (CER) is a comprehensive online research initiative that asks about the patient and caregiver cancer experience. It is open to anyone with a cancer diagnosis as well as to informal caregivers who assist with their care. The Cancer Experience Registry covers topics ranging from emotional well-being, to financial issues, to diagnosis and treatment. The data collected through the CER provide unique insights that we share with academic, advocacy, and medical partners to increase the psychosocial body of cancer knowledge. Your experience is critical to our understanding, so share your story today!
- ISOO: Patient Education Videos
- ISOO: Patient Education Fact Sheets
- Head & Neck Cancer Innovations 2020 Video Series
- AHNS: Cancer Survivorship – Patient Education on Post-Treatment Care
- THANC: Tyroid, Head and Neck Cancer Guide
- National Comprehensive Cancer Network – Patient Guidelines: Head and Neck Cancers
- National Comprehensive Cancer Network – Patient Guidelines: Thyroid Cancers
- ESMO – Multi-lingual Patient Guide
- HPV Cancer Resources
- The Oley Foundation
Striving to enrich the lives of those living with home intravenous nutrition and tube feeding through education, advocacy, and networking.
- Kesem
Kesem’s mission of supporting children through and beyond a parent’s cancer, and our vision of ensuring that every child impacted by a parent’s cancer is never alone, can only be realized through an ongoing, steadfast commitment to Diversity, Equity, and Inclusion in every part of our organization.
- HNC Living Foundation
Individual financial assistance for patients under active treatment for head and neck cancer. Apply online.
- Cancer Support Community
Helpline: 888-793-9355
Monday-Friday: 9:00 a.m.-8:00 p.m. ET
Saturday: 9:00 a.m.-5:00 p.m. ET - David’s Dream & Believe Foundation
Financial assistance. Application available online.
- Cranio Rehab
Products for trismus, xerostomia (dry mouth), and oral mucositis (radiation mouth burns). Assistance available for those without insurance.
- Family Reach
A financial Lifeline for Families Fighting Cancer
- Apply for HNC Living Foundation’s Individual Financial Assistance
- Pan Foundation
- HNCA Gas Card
- Cancercare
- Cancer Financial Assistance Coalition
- Cancer Patient Support Foundation
- Cleaning For A Reason Foundation
- Corporate Angel Network
- EmergingMed Clinical Trial Navigation Service
- Patient Advocate Foundation
- The HealthWell Foundation
- Social Security and Disability Resource Center
- Partnership for Prescription Assistance
- The Simple Dollar’s
- Cancer Horizons
- Cancer Finances
- American Cancer Society
- Adenoid Cystic Carcinoma Research Foundation
- Adenoid Cystic Carcinoma Organization International
- American Society of Clinical Oncology
- Association of Oncology Social Work
- CancerCare Inc.
- Cancerfatigue.org
- The National Comprehensive Cancer Network
- National Coalition for Cancer Survivorship
- Quackwatch, Inc
- American Head and Neck Society
- Oral Cancer Foundation
- Mouth Cancer Foundation (UK)
- The Swallows (UK)
- Support for People with Oral, Head and Neck Cancer (SPOHNC)
- Thyroid, Head and Neck Cancer (THANC) Foundation
- World Health Organization
- Cancer Council (AU)
- Health Soul
- NCI-designated Cancer Centers
- MD Anderson Cancer Center
- The James Cancer Hospital and Richard J. Solove Research Institute
- The Johns Hopkins Oncology Center
- Greenbaum Cancer Center
- Head and Neck Center
- The Mayo Clinic
- Memorial Sloan-Kettering Cancer Center
- UCLA Medical Center
- UCLA’s Jonsson Comprehensive Cancer Center